The Positives:
Cyrus is averaging a pound a week right now on EleCare. 3.5 pounds in 3.5 weeks. The past couple of days have yielded little or no blood and... solid-ish bunny turd-like stools. Amazing. On top of this, he feels great and looks great too.
The Negatives:
Other foods are starting to become an issue. Particularly, cheese. He wants some and we're not giving it to him. He also requests to *smell* each and every food that we eat. This is kind of cute in some ways, but our son has a little obsessive-compulsiveness about him and this is starting to get annoying.
The Bottom-line:
Enteral nutrition is pretty fantastic. Looking at it externally from a parent's point-of-view, I would do it full time if I were a person with Crohn's and could afford it.
Cyrus is averaging a pound a week right now on EleCare. 3.5 pounds in 3.5 weeks. The past couple of days have yielded little or no blood and... solid-ish bunny turd-like stools. Amazing. On top of this, he feels great and looks great too.
The Negatives:
Other foods are starting to become an issue. Particularly, cheese. He wants some and we're not giving it to him. He also requests to *smell* each and every food that we eat. This is kind of cute in some ways, but our son has a little obsessive-compulsiveness about him and this is starting to get annoying.
The Bottom-line:
Enteral nutrition is pretty fantastic. Looking at it externally from a parent's point-of-view, I would do it full time if I were a person with Crohn's and could afford it.
Interesting. A lot of people I know with Crohn's/UC (including myself) craved cheese. White bread and cheese. When I was sick, we would always hear from other patients and their parents: "all he will eat is pizza, grilled cheese, nachos, macaroni and cheese, etc., but at least he's eating." I was in the same situation...
Always wondered if it was some connection with the MAP bacteria (http://news.bbc.co.uk/2/hi/health/3130173.stm).